International Ataxia Awareness Day
October 1st @ 11 am - 2 pm
Layton Commons Park
Phase 1 Pavilion
437 N Wasatch Dr
Tuesday, November 8th at 6 pm
John A. Moran Eye Center
March 10-12 2017
NAF Annual Ataxia Conference
San Antonio, TX
Meetings are a great resource to meet fellow Ataxians and learn from excellent advocates! We would love for you to join us at the UASG meetings!
Tuesday, April 14, 2015
The meeting was started with a power point presentation of the 58th Annual Membership Meeting that was held in Denver, Colorado March 6-8 by Ryan, Jenny Durrant and Nancy Willard. Later Edward Lumis from the finical group John Hancock spoke about the different issues that disabled individuals need to think about. His information was much needed and well received.
March 6-8, 2015
The 58th Annual Membership Meeting was held in Denver, Colorado March 6-8, 2015. It was a wonderful conference with speakers who spoke about different ways of living with Ataxia, exercise, research and many more. Information booths, an Activity Room, Birds-of-a-Feather are some of the activities at the NAFAMM. The NAFAMM is a great way to meet other Ataxians and learn information regarding Ataxia. Plan on attending the NAFAMM in 2016 in Orlando, Florida April 1-3. Visit ataxia.org for more information. View the 2015 NAF Conference Recap
Tuesday, February 10, 2015
The group had am open session where Dr. Lisa Ord facilitated. Individuals were encouraged to ask any questions or voice any concerns they had about Ataxia. These are always good meetings where we can feel connected to each other and share our feelings. Corinna Tanner, who is a pursuing her PhD in nursing /gerontology among many other things, she is also visually impaired. She spoke about how she lives effectively with a disability, family and career. She was very inspirational for all who attended.
Tuesday, November 11, 2014
The Utah Ataxia Support Group had a great turn out for our meeting November 11, 2014. We celebrated the huge success of our first Walk-N-Roll with a recap by Nancy Willard. Ryan and Jenny Durrant presented us with a wonderful slide show. Lisa Ord, PhD, LCSW, discussed dealing with anxiety and depression for those with Ataxia, their families, and caregivers and gave us steps and ideas to deal with Ataxia. Dr. Lisa Ord also introduced Sophia Ahmed, a Masters Student of Social Work, she discussed the seven stages of grief and lead the group in a quiet time of meditation.
Saturday, September 27, 2014
The Utah Ataxia Support Group held its first Walk-n-Roll at Layton Common Park on Saturday September 27th. It was a great success with over 100 attendees, some of who have been fighting Ataxia for years and others who came long distances to participate. And even though it rained, everyone was excited to walk for themself or for a loved one. It was a fun day to learn more about Ataxia and to visit with friends. Thousands of dollars were raised! So a BIG THANK YOU to all those who attended, helped with the activities, generously donated and/or bought an auction item. The UASG inaugural Walk-n-Roll was a success because of you!!
Tuesday, August 12, 2014
Rain welcomed us to the meeting featuring Dr. Daniel Scoles, PhD, from the U of U. He spoke of break-through treatments he is working on for SCA2. His talk was very informative and hopeful. The UASG appreciates all the work and research done on our behalf.
Tuesday, June 10, 2014
The UASG had a great evening! It was the first Summer Social with 30 members! It was held at Grant & Nina Buetler's home where they provided a wonderful sit-down dinner. A huge thank you to them for their generosity! It was nice to socialize and meet more members from the UASG!
Saturday April 19, 2014
This was an important meeting to attend because the 2014 NAF Conference was recapped. Ryan and Jenny Durrant shared the information that was presented at the conference. View the 2014 NAF Conference Recap.
Tuesday, February 11, 2014
The meeting was held at the John A. Moran Eye Center in Salt Lake City with 15 people in attendance. We learned what the needs and wants are for the group and Dr. Lisa donated fun door prizes for attendees. It was a great meeting!